Symptoms Sometimes Flare Up

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Even stories with happy endings sometimes have bumps in the road. They can happen any time. After I started school in January, I started to feel a little off my game. Sure, I was working part time and volunteering at school several hours per week but I was more than tired. On occasion, my legs would suddenly disappear on me. My thinking wasn’t clear, something I refer to as brain fog. Fatigue was constant, all I would want to do is lay around. This was all frustrating but not surprising. Between work, school, family and volunteer jobs I hadn’t been taking the best care of myself. My symptoms were coming back.

It was manageable. I went to Dr. Chung and he gave me bee venom and low dose immunotherapy for Lyme disease. These helped me feel okay but not as strong and healthy as I had been. It felt like I was treading water: I could do all the things I had to do. I didn’t miss many scheduled events. Exercising was a challenge, I wasn’t able to run but could walk. I went to work and volunteer jobs but occasionally fell while I was there. When I was home I’d fall sleep right away. I was just staying afloat.

Then one day in early May I woke unable to move my right leg. For the first time in four years I needed to find my cane and use it. I was furious about it. I planned on going to a family party the next day and all I could think was “Oh, God, they’re going to think I can’t handle working and doing all the things I’ve been doing. They’re going to be so worried seeing me like this.” They were but it was okay.

Dr. Brobyn was kind enough to squeeze me in on Monday. I tested for retrovirus and mold in addition to Lyme. So, I started taking all the supplements she recommended: cistus tea, cocktail, nasal sprays for mold and chlorenergy. In the office that day I also had some low dose immunotherapy. Even being a patient for years and having a good idea what the docs here do, I still found the entire visit a bit frustrating and sad. In my head I knew that I wasn’t back to square one, but I certainly was no where close to the marathon shape I had been in just a few months before.

Over the next few weeks there was little change. My good days were better but I still felt weighed down on most days. My thinking was definitely clearer which was the most important thing to me. One day, when Dr. Chung came in during my ozone treatment to give me bee venom, he asked how I was. It was all in my power not to cry. I just said “frustrated” I had thought I would have been better faster. He checked way back in my chart then retested me for metals. It seemed there was some lead sensitivity affecting me much to my surprise. Dr. Brobyn had just checked me for metals and everything else. There was no lead specifically noticeable on her testing at that point. But that is how the testing goes sometimes. Sometimes the weaknesses in our bodies appear at different times.

I started foot baths, had laser detoxification therapy, IV EDTA and continued on all of my other supplements. Within the week I felt better and started working on my activity tolerance again. I built up walking, stairs and strength work gradually and began running again a few weeks later.

Click for information about detoxification therapies.

I’m sharing this story because its important for readers to know its not always easy. There can be bumps in the road. Pacing ourselves is important. There are times finding the right answer for what’s going wrong with the body takes longer than we would like. Dr. Brobyn often says “It’s peeling the layers of the onion.” Hang in there. It will get better.

One Comment

  1. Truth.
    Thanks for the timeless post, Brigid. I have made great progress, always moving forward in the past 6 years – sometimes by only millimeters, other times by steady progress, infrequently by explosive seasons of energy! Being ill and in bed again for weeks is frustrating. The recurrence of symptoms that I’ve already conquered, discourages my optimistic personality. I am baffled. I work so hard to be healthy and strong and aware.

    I am humbled again that I am not invincible.
    I am grateful that I am not as debilitated as the worst years of my infirmity.
    This too shall pass. I will be better,
    … again.

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